May is Neurofibromatosis Awareness Month!
Neurofibromatosis (NF for short) affects 1 in 3,000 people. If you think it is hard to pronounce, try living with it. It is a progressive disorder that causes painful tumors to grow along nerves inside and outside of the body.
It can vary in severity from one person to the next.
It can cause disfigurement, optic gliomas, seizures, migraines, learning disabilities, and scoliosis just to name a few. There currently is no cure or treatment.
NF is near and dear to my heart because not only do I have this disorder, but both my daughters have it as well.
I am lucky I have a great support network: my mom, author Jacquie Rogers; my wonderful husband and best friend, Rodney Christesen; and a really great friend, who designed my wedding gown and took the time to learn how to teach children with NF, Stony Fletcher. She homeschooled my daughters for two years so they could make up what they were deficient in.
Then there's my beautiful daughters Yana & Moriah Christesen.
Check back here for updates!