I've had quite a run on TikTok this year--I went from 200 followers to over 1,000 followers in a week, and the last time I looked, I had 33.4k! People have been really wonderful and open to hearing about my journey with neurofibromatosis type 1. It has been a joy to "meet" them on my TikTok live shows.
|You never know how NF will manifest itself,|
but we do know that it affects everyone differently,
and that most of the more serious issues are hidden.
He also posted on YouTube. (This show is audio only--the same version as Spotify.)
And here are a few photos showing my journey with NF:
Donate in my name to the
Ending NF Through Research
💓💓Thank You So Much! 💓💓